As the father of four sports-playing children, David Silverstein has long grappled with the high cost of hospital care. Theres always a bill for something, he said, laughing.
But something changed years ago when he received an emergency room bill for his then-high school-aged daughter, Kailey. The total came to $12,000, but Silversteins portion came in just under $1,000.
Despite a background in health care Silverstein has worked with hospitals and insurance companies for years through his management consulting business he was flummoxed by the math. The 92% discount may have benefited him, but it also seemed arbitrary and confusing, he said.
But after he paid the bill, he couldnt get the hospital to respond to his questions. So he decided not to make that mistake again.
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He has been challenging hospital bills ever since, and started doing it for non-family in early 2016, through his Colorado-based nonprofit Broken Healthcare. Silverstein estimates that hes reached a couple of hundred people since, including those who have used his techniques on their own. None of the roughly 40 patients hes given direct help to have paid a cent, he said.
Providence Saint Joseph Health, where Silverstein has challenged his daughters emergency room bills, told MarketWatch that its worked to simplify its medical billing for a number of years.
We work to help patients navigate what is an overly complicated process, but the industry has to do better, said , Providence Saint Joseph Healths Kathleen Dowling. The fix will take advances in technology, coordination among the government, providers and the health insurance industry and a tremendous investment.
Silversteins strategy is an unusual one, and possibly even unique. Plenty of non-profits and for-profit businesses aim to help consumers with expensive medical bills. But while these groups may dispute or negotiate bills, theres an assumption that patients will ultimately pay any legitimate charges, for fear of eventually damaging their credit.
But more and more people are now affected by high out-of-pocket costs, thanks to the rise of cost sharing, lending Silversteins efforts a new urgency.
The problem Im trying to address is that nobody has figured out how to do anything about it. We know the problem is there, but we have a broken political system that is incapable of fixing it, he said. I know it sounds crazy that one guy can take on the health care system but… I have no choice not to act.
Read: American health care is so messed up that a whole industry has been created to help navigate it
After a few days of extreme pain last year, Jamesia Shutt realized what she thought was back spasms was probably something worse. She knew she had to go to the emergency room.
Four hours, several tests, some morphine and IV saline later, the 34-year-old received a diagnosis of pneumonia and was sent home.
Then the bill came, two weeks later.
Oh my gosh, yeah, I freaked out, she said. I went in there expecting it to be expensive its an emergency room. But I didnt expect after their adjustments and everything to spend $8,000 for a four-hour visit.
The bill was technically $16,800, not including the roughly $1,000 cost of the emergency room doctor. After uninsured discounts, the total came to about $9,000 still too much for Shutt, an art student, whos lived in Colorado her whole life.
Thats where Silverstein came in. Together, they reached out to the hospital, asking it to explain its billing. In return, Shutt said, the hospital simply insisted that she pay, offering her payment plans.
David Silverstein began challenging hospital bills for non-family members in 2016, and says the roughly 40 people hes worked directly with havent had to pay a cent. Parker Adventist Hospital, which is part of Centura Health, wouldnt comment on Shutts particular case. But it did note that Centura Health has offered an online price tool which includes regional pricing for the top 65 procedures for those who self-pay since May 2015, and patients can request a custom price quote.
We are committed to evolving our transparency strategies and sharing resources to help patients navigate and better understand where to go for care, a Parker Adventist Hospital spokeswoman said.
Shutt and Silverstein continued to press for more information. Though medical providers will give out a more detailed bill upon request, those dont provide a rationale for the listed cost.
So bills appear confusing at best, indecipherable at worst. One of Shutts charges, for the emergency room, totaled around $9,000. Then she was charged separately for a number of other tests, medical imaging and pharmacy services.
She wondered, was the $9,000 charge simply for the room itself? Should anything else have been included in that? But there was nothing to refer to, she said: no public pricing list, just the hospitals word that the prices were correct.
How do you know youre not just getting raked over the coals, which you probably are? Shutt asked. She and Silverstein wanted to clarify what is being charged, how do you come up with billing, how are your prices charged. Do you pull them out of thin air?
Advocates like Silverstein say this is part and parcel of a larger problem: U.S. patients have long been unable to find out the price of a medical procedure until after it occurred.
In this, the U.S. health care system is unlike any other customer experience. Imagine sitting down to a meal, going on a flight, or sending your kids off to school, all without knowing the cost or outcome until later, health care advocates say.
Theres no other market in the world where we ask this much of the consumer and give them this little information about what they can expect from us upfront, said David Vivero, chief executive of health care transparency company Amino.
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